One of our longtime bloggers and member of our Vapebuster Team Bor Verkroost has made the news here in Holland and internationally.
If any of you have followed his blog you will know that he has suffered with EB (Epidermolysis Bullosa, aka ‘blistering skin’) a very rare genetic skin disorder.
Not only is this disease physically painful but after so many years of coping with it, it has now become emotionally painful as well.
‘Beauty is only skin deep’, a phrase that Bor wishes people really meant rather than only give lip service to. He is not someone that inspires pity, in fact just the opposite. He is a man of courage, strength of character, intelligence and humor. He has lots of good friends and a loving and supportive family but something is still missing for him.
Four little letters, with big impact – LOVE.
Over the years he has watched his friends settle down, marry and have children. He has managed to cope with all of his physical challenges but at this point in his life he feels that a life without love is a life not worth living.
He recently made a public announcement on Facebook by publishing a letter stating that he will choose euthanasia (legal in the Netherlands) within one year, if his love life doesn’t improve. In his letter he writes:
“I have won about 31 battles against cancer, but over the past
eight years my condition has significantly deteriorated.”
“Slowly waiting for the cancer to spread in extreme pain doesn’t
sit well with the proud and (hopefully) honourable man I am.”
His euthanasia letter brings up a lot of questions and discussions and he is at the center of this honest, raw and heartfelt story asking so simply and so daringly to just be loved for who he is.